This special panel conversation explored the unique challenges and strategies of individuals living with Parkinson’s disease without the support of a family care partner. Moderated by Sarah Singer, LICSW, our panelists Bob Dixon, Suzann Brown, and Doris Martin shared their personal experiences, highlighting the ways they navigate daily life and access resources.
We discussed the emotional, physical, and social impacts of managing Parkinson’s disease solo, as well as the importance of community networks and the healthcare team in providing essential support.
ABOUT OUR SPEAKERS:
MODERATOR: SARAH SINGER, LICSW
Sarah Singer, LICSW is a clinical social worker with extensive experience in supporting people living with serious health conditions. Having worked with people diagnosed with cancer, kidney disease, and other illnesses, she brings a deep understanding of the challenges faced by patients and their families. Sarah currently leads APDA’s PRESS™ program and facilitates a support group for care partners of people with Parkinson’s disease for the APDA Massachusetts Chapter. Her commitment to people with Parkinson’s disease spans over a decade, during which she has also provided consultation and support to fellow support group leaders.
BOB DIXON
Bob Dixon was diagnosed with PD in 2018. He is a Vietnam veteran who pinpoints the origin of his diagnosis to his exposure to Agent Orange. He was an architect by trade. He’s just moved from one independent living facility to another in Bonney Lake, Washington in order to be closer to his daughter. Bob is a widower. Though he’s recently been sidelined by heart problems, he remains an active participant in a couple of PD support groups. Bob is 77.
SUZANN BROWN
Suzann Brown of Stillwater, MN was diagnosed with PD in 2021 during COVID. Suzann was a senior investment advisor in private wealth management. She’s an avid Rock Steady boxer, and works as a life enrichment assistant in an assisted living community. She has a son in Montana, sister in Hawaii, and two brothers in Florida. She lives in a home with her dog, Charlotte, and roommate. Suzann is 67 years old.
DORIS MARTIN
Doris Martin was diagnosed with Parkinson’s disease in 2011. Valuing independence and change, most of her working life was in areas of interest such as the 1984 L.A. Olympics and managing a private guest ranch in the Sierra Nevada mountains. Working as a Cruise Director aboard small expedition ships and large yachts afforded her the opportunity to travel to remote regions like the Arctic and the Antarctic, up the Amazon River and across the South Pacific. Today, at nearly 80 years old, Doris spends a good deal of her time taking care of her health. Finding the balance between cherished independence and the need for care is an ongoing endeavor. She has a strong support system of friends and neighbors, and also participates in several PD support groups. She lives alone in her cozy cottage in a lovely Seattle neighborhood, where she is happiest – whether puttering in the garden, hosting her book club, or sharing a meal with friends, Her goal is to remain in her home as long as possible, and she is exploring financial and practical options that would enable her to do so.