Support Groups
These support groups are for people with Parkinson’s and their caregivers. Each support group is facilitated by a peer, care partner, or health professional. The format of each support group varies, but many have monthly speakers who speak about topics such as nutrition, exercise, physical therapy, and voice therapy.
If you are interested in starting a support group in your area, please contact Susan Callison, the Program Manager at 515-782-4386 or apdaiowa@apdaparkinson.org.
If you are interested in a support group in Iowa, please click here and fill out a form to let us know you are interested and where you are located.
Young Onset Parkinson’s Disease Support Group
The Young Onset Parkinson’s Disease Support Group of Iowa is a group of people with young onset Parkinson’s and their caregivers who provide support to each other with the unique challenges that this conditions creates at a younger age.When someone who is 21-50 years old receives a diagnosis of Parkinson’s disease, it is referred to as early onset Parkinson’s disease, or young onset Parkinson’s disease. Learn more about young onset Parkinson’s disease.
Meeting Format: Meetings are held in-person around the Des Moines Metro, some meetings are teleconferenced to include members from around the state. Social gatherings are also planned on a regular basis.
Facebook Group: There is a private Facebook group available to reach other people with Young Onset Parkinson’s disease. Search ” Parkinson’s Young Onset Support Group Of Iowa”
Contact: Michelle Lorey at mlorey1968@gmail.com or Kim Roby kimbo6179@aol.com
| City/County | Leader/Phone | Location |
| Ackley/Hardin County | Alan Keninger alankeninger@hotmail.com 641-521-6433 | Ackley Civic Center 640 Main St. Ackley IA 50601 |
| Ames/Story County | Elizabeth Stegemoller esteg@iastate.edu 515-294-5966 | First Baptist Church of Ames 200 Lynn Ave, Ames, IA 50010 |
| Anamosa/Jones | Jones Regional Medical Center Allison Niedermann allison.niedermann@unitypoint.org – 319-481-6195 | Jones Regional Medical Center 1795 Hwy 64 East, Anamosa, IA 52205 |
| Ankeny/Polk County | On With Life Tammy Miller tammy.miller@onwithlife.org 515-289-9662 | 4th Thursday of the month, 5-6:30 pm In Person at On with Life, Ankeny and via Zoom |
| Ankeny/ Polk County | Colleen Miller colleen.miller@rockvalleypt.com 515-264-2559 Exercise groups are also available | Rock Valley Physical Therapy 1705 N Ankeny Blvd Suite A Ankeny, IA 50023 |
| Atlantic/Cass County | Jon Jordan JJordan@wesleylife.org 712-243-1850 Exercise groups are also available | Heritage House 1200 Brookridge Cir Atlantic, IA 50022 |
| Burlington/Des Moines County | Stephie Libben slibben@grhs.net | Great River Medical Center – Black Hawk Room 1221 Gear Avenue Burlington, IA 52655 |
| Carroll/Carroll County | Melissa Schultes mschultes@stanthonyhospital.org 712-794-5815 Exercise groups are also available | St. Anthony’s Regional Hospital 311 S. Clark Carroll, IA 51401 |
| Cascade/Dubuque County | https://www.facebook.com/CascadeAreaParkinsonSupport | |
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| Centerville/Appanoose | Sherri Doggett and Malinda Hancox sherri.doggett@mercyoneiowa.org 641-437-3445 | Mercy Medical Center One St. Joseph’s Drive Centerville, IA 52544 4th Wed. 10:00 am |
| Clinton/Clinton County | Lori Kennedy Lori.kennedy3@gmail.com 563-242-7502 | Zion Lutheran Church 439 3rd Avenue S Clinton, IA 52732 |
| Davenport-Quad Cities/Scott County | Julie Norman-Geerts 563-271-7690 Caregiver groups are also available | Palmer Hills Retirement Center 2617 Maplecrest Rd Bettendorf, IA 52722 |
| Dubuque/Dubuque County | Gerald Osterhaus judyosterhaus@gmail.com 563-583-7827 | Finley Hospital Woodward Auditorium 350 N Grandview Ave Dubuque, IA 52001 |
| Fairfield/Jefferson County | Michelle Boeding Kreuter MBoeding-Kreuter@jeffersoncountyhealthcenter.org 641-469-4295 | Jefferson County Health Center Conference Room C 2000 S. Main St. Fairfield, IA 52556 |
| Iowa City/ Johnson County | Gloria Drapac gloria.drapac@gmail.com 319-621-5224 or Angie Longou angie@angielongou.com 319-631-2385 | Grand Living at Bridgewater 3 Russell Slade Boulevard Coralville, IA 52241 |
| Leon/Decatur County | Shannon Erb serb@d-c-h.org 641-446-2229 link to information | Decatur County Hospital 1405 NW Church St Leon, Iowa 50144 |
| Marshalltown/ Marshall County | Lois Eige ljeige@gmail.com 641-751-9510 | Our Savior Lutheran Church 3001 S. 6th St. Marshalltown, IA 50158 |
| Muscatine/ Muscatine County | Pat and Wayne Corriell pat.corriell@gmail.com 319-321-6311 Mike and Jayne TeStrake testrake@machlink.com 563-299-9767 | Wesley Family Life Center 114 W 4th St. Muscatine, IA |
| Osceola/ Clarke County | Clarke County Hospital 800 S Fillmore St Osceola, IA 50213 2nd Wednesday of every month – Starts in August 2024 | |
| Sioux Center/Sioux County | Brittney Moser Britney.Moser@siouxcenterhealthy.org 712-722-8125 Exercise groups available | Crown Pointe Estates 1400 7th Avenue SE Sioux Center, IA 51250 |
| Sioux City/ Woodbury County | Sally Reinert sreinert@evertek.net 402-987-3516 | Siouxland Center for Active Generation 313 Cook Street Sioux City, IA 51103 |
Spirit Lake/ Dickinson County | Sue Boettcher boettche@iastate.edu 712-336-3488 | Bedell Family YMCA 1900 41st St. Spirit Lake |
Storm Lake/Buena Vista County | Glen Schulz glennschulz1949@gmail.com 201-317-3318 | St. Mark Lutheran Church 1614 West 5th Street Storm Lake, IA 50588 |
| Waukee/Dallas County | Laura McPike apdaiowa@apdaparkinson.org 515-478-4653 | Independence Village Community Room 1650 SE Holiday Crest Circle Waukee, IA 50263 |
| Waverly/Bremer County | Mary Ochoa mochoa@waverlyhealthcenter.org 319-352-4961 | Waverly Health Center 312 9th Street SW Waverly, IA 50677 |
| Webster CIty/ Webster County | Diana Rafka, OT drafka@21stcenturyrehab.com ——————————– Laurie Andrews, DPD landrews@21stcenturyrehab.com 515-832-7735 | Van Diest Medical Center Conference Room 2350 Hospital Dr. Webster City, Iowa 50595 (enter through the West entrance) |
| West Des Moines/ Polk County | Lynhon Stout lynhon19@gmail.com 515-965-9245 | Grand Living Tower Place 540 S. 51st Street West Des Moines, IA 515-850-5540 |
| West Des Moines/ Polk County | Young Onset Support Group Kim Roby kimbo6179@aol.com ———————————- Michelle Lorey mlorey1968@gmail.com | Please contact Kim Roby or Michelle Lorey for information about location and timings. Private Facebook Group- Search: Parkinson’s Young Onset Support Group of Iowa. |
| Urbandale/Polk County | Lewy Body Dementia Support Group Cookie Cranston 515-306-2925 | Currently meeting in person at Gloria Dei Lutheran Church Urbandale, IA 50322 and on zoom |
| Bettendorf, IA/ Scott County | Lewy Body Dementia Support Group Marilyn Woelke, MAG, LMSW, CDS mewoelke@gmail.com 309-781-6462 | The Fountains Senior Living 3726 Thunder Ridge Rd. Bettendorf, IA |