THE IMPORTANCE OF TACKLING PD WITH A TEAM APPROACH
A Parkinson’s disease (PD) diagnosis can be challenging — especially when trying to navigate it on your own. For most, symptoms change over time, and having multiple people on your team with different areas of expertise will help you make informed decisions and feel supported along the way.
How to Build the Best Parkinson’s Care Team
The first member of your team will most likely be your primary care physician who made your original PD diagnosis and/or the person who provides your current treatment.
It is best for people with PD to be treated by a neurologist as they have unique training in brain diseases and can understand your diagnosis on a deeper level. If possible, a neurologist who specializes in PD and other related disorders — referred to as a Movement Disorders Specialist — will be a great addition to your team. Their training allows them to have a greater level of expertise in managing complex symptoms and treatments of this disease. They are also more likely to be familiar with available clinical trials for PD if you are interested in participating.
Who Else Should be on My Care Team?
It’s important to remember that everyone’s needs with PD are different, and the members of your team may change over time. With help from your neurologist or Movement Disorders Specialist, you can select members of your support system based on your current symptoms and treatment goals.
For example, building strength, walking, and improving balance are common goals for people with PD, therefore a physical therapist might be a great addition to your team. Even if you do not experience motor challenges now, it is wise to be evaluated by a physical therapist periodically to address any issues before they become worse. Your neurologist can help connect you to physical therapy services, or contact the APDA National Rehabilitation Resource Center at 888-606-1688.
Depending on your needs, you might also consider an occupational therapist who can help you better manage the tasks of daily living, a speech and language pathologist who can help you strengthen your voice, a registered dietician who can help you build a diet that works for your particular health and medication needs, a social worker who can help you navigate the health cares system and provide support, and others.
Having multiple people on your team with different areas of expertise will help you make informed decisions and feel supported along the way.