VICTORY FOR THE PARKINSON’S DISEASE COMMUNITY: THE NATIONAL PLAN TO END PARKINSON’S ACT IS NOW LAW
It’s official: The President has signed The National Plan to End Parkinson’s Act into law! This is a momentous event for the PD community — and APDA is proud to have been a part of the efforts that made this happen.
In 2022, the U.S. House of Representatives introduced the National Plan to End Parkinson’s Act — the first-ever legislation in Congress focused on curing and preventing PD and ensuring quality care for those living with the disease. Since then, with the help of many advocates in the PD community, it worked its way through both houses of Congress and was signed into law.
This legislation will create an advisory council composed of representatives from federal agencies already working to end PD, as well as people living with PD, caregivers, health care providers, and representatives from non-profit organizations with experience in PD research and care. Once established, the advisory council will meet quarterly to create a strategic plan to end PD and will be responsible for reporting to Congress every two years on its progress and impact.
We are thrilled that there will be more focus on PD from the government to help make an impact on the PD community. This is an extraordinary victory for those living with this challenging disease — but there is still so much work to be done. APDA eagerly supports this new law, and we plan to keep you updated about the next steps in this process as the advisory council is formed and begins its critical work. In the meantime, the need for APDA’s programs and services remains as vital as ever and our commitment to improving the lives of those affected by PD is unwavering.