TOP TIPS FOR CARE PARTNERS
1. Expect the Unpredictable
PD is a progressive illness, meaning that the symptoms may worsen over time. However, this progression doesn’t always happen in a predictable way. Educating yourself about the disease can help you be aware of what may come, but you should also know that unexpected changes may happen.
2. Get Organized
As a care partner, your responsibilities may include communicating with the healthcare team, coordinating treatments and appointments, and helping manage medications, exercise, nutrition, socializing, and more. Be sure to take advantage of various tools and tricks that can help keep you organized and efficient.
3. Prepare for the Future
Because PD is a progressive disease and affects people at different stages of life, it’s wise to be aware of what is to come. APDA has a series of blog posts entitled “Planning for the What Ifs” that can help you navigate some challenging topics such as finances, mental health challenges, advanced care, and more.
4. Take Care of Yourself
Caring for someone with a progressive illness can at times be physically and emotionally tiring. That’s why it’s so important for you to take good care of yourself. Consider joining a care partner support group, finding a few minutes to call a good friend, getting some fresh air, and exercising.
It can be helpful to hear from other care partners who understand what you’re going through. Visit our Care Partner Blog Post to learn more. Our Becoming a Care Partner publication may help as well.